So when I first “planned” this blog post it was going to be a witty yet informative little piece about surgery, the interesting roommates I had in my shared room, my bionic pee (it was green! For real!!! Told you I’m bionic!) and the awesome quality of MSK hospital food. A few days later I’d be home, ready to chat about my daughters PreK graduation and about how this year for sure Jay has taken Father of the Year to new heights.
But alas, my ‘tough chick’ exterior surely took a beating. First up, a 4 day stay turned into 9 days in the hospital and I left not at all feeling well. Fast forward a week later and I was back in urgent care and the hospital for another 2 nights.
Ascites (old blood from the surgery) in my belly that had to be drained (3L worth!) and then a bowel that just doesn’t want to wake up and work properly…enter laxatives, suppositories, a failed enema, and 4L of colonoscopy prep and whilst I was sent home again I’m still not sure we are all in working order.
On top of this my belly is still severely bloated and hard because my liver is inflamed and it’s working really hard to get back to a manageable state (here’s where we hope the new chemo pump works).
Oh yeah, and don’t forget, chemo still has to happen in all this too. So whilst in the hospital I had my pump filled with Fudr which is some drug for my liver. And next week I need to go and get my systemic chemo in my chest port. It just never ends.
But as I’m watching a bunch of guilty pleasure chick flicks or laying back finally having the coherence to read a book I see the light at the end of the tunnel. It’s a long road but I will get there. The pooping scares me but I’m sure we can make this happen regularly!
And until then I rest in the knowledge that I’ve finally updated everyone so people know where I’m at because it’s been a fairly intense month I have to say.
There’s still so much to be said, and it will come in time but my attention span is a little short at the moment. But a huge shout out to my mum for flying over at the moments notice, Lyla for honestly being the most resilient, sweetest and just dependable little 5 year old and my husband. Without Jay at the hospital every day I don’t know what I would have done. Your husband aimlessly walking laps of your hospital floor is just the epitome of love 🥰